I just found out about this, kind of late in the day,
but (thanks to
lothie) let me point out that
today is
International Awareness Day for fibromyalgia, CFIDS, and ME.
Ironically, I'm too wiped (fatigue and pain from fibromyalgia,
no doubt exacerbated by my long day yesterday and having to force
myself out of the house to get to a doctor appointment today) to
write something meaningful about it, but a lot of what Lothie
wrote applies, so I encourage y'all to please go read her
entry (linked above). My story differs from hers but the
important points are there. Some things that are easy for
others are not easy for us; we don't look sick; it
sucks to get hit with a double-whammy of having to change plans
due to pain and/or fatigue and then feeling guilty for letting
others down.
Believe it or not, there are still some folks out
there claiming that it's "all in our heads". One of my
bandmates pointed out
this MSNBC
article about new developments, including an objective
proof that we're not imagining the pain.
This quote jumped out at me: "Often patients are
workaholics who push themselves to the limit, despite years
of escalating pain. Then a trigger -- a car accident, a viral
infection -- pushes them over the edge and knocks their
nervous systems out of whack." That sounds familiar.