eftychia: Me in kilt and poofy shirt, facing away, playing acoustic guitar behind head (Default)
posted by [personal profile] eftychia at 05:24am on 2016-04-28

"As a kid growing up with epilepsy, I made myself colorful as a survival strategy.

"Age 14, a sharp, distinct, intentional before and after: Before seizures, I was the shy, quiet girl drowning in baggy kitten sweatshirts and Wrangler jeans; after seizures, I showed up to school in fishnets, combat boots, heavy black eyeliner, and dyed red-platinum-orange-pink-black (whatever fit the mood that week) hair. While the other kids whispered Karrie is on drugs, Karrie is nuts, Karrie pisses her pants, Karrie is faking, Karrie is a freak, I said fuck it. I will show them a freak. My clothes got weirder. My writing got weirder. My musical tastes got weirder. My art got weirder. I got weirder.

"I didn't know until years later that Prince did the same damn thing. Prince had epilepsy, too. Prince got freaky as survival strategy.

"In 2009, he talked about his epilepsy publicly for the first time on PBS with Tavis Smiley. 'From that point on,' he said, 'I've been having to deal with a lot of things, getting teased a lot in school. And early in my career I tried to compensate by being as flashy as I could and as noisy as I could.'

"Prince was a walking disability poetics.

"After that, when I listened to his music, I thought: Prince has a Sparkle Brain."

-- Karrie Higgins, "Prince and the Sparkle Brains (cw: disability, ableism, sexual abuse), 2016-04-23 [thanks to [info] - personal twistedchick for linking to this. As she and [info] - personal anonymous_sibyl pointed out, not an easy or comfortable read, but worth it.]

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