eftychia: Me in kilt and poofy shirt, facing away, playing acoustic guitar behind head (cyhmn)
posted by [personal profile] eftychia at 05:24am on 2022-09-16

"I've talked around this idea before but I'm realizing that if your politic centers around care work in any fashion, you have to starting integrating mass #LongCovid disability into your thinking and work.

"Entire family and community networks are becoming debilitated/ disabled.

[...]

"So when I hear from providers, 'can your partner help you with that?', they're clearly not seeing the full picture.

[...]

"So if my household is all (becoming) disabled or at least slowed down by multiple Covid infections... who is supposed to care for me? for us? for my parents or my spouse's parents as they age (and also are disabled by #LongCovid)?

"How do we reconceptualize care work when the majority of those both needing and providing care are becoming disabled?

[...]

"In my own life, my spouse is chronically ill and become more debilitated. My parents are aging and also didn't bounce back from Covid well. My spouse's parents, too. My friends and comrades are disabled and/or already do TONS of care provision.

"Who is left to ask for help?

"The arriving future requires us to

"1) reconceptualize care and care work

"2) reorganize how care is provided and compensated

"3) expand our ideas about whom we provide care for or are responsible to

"4) slow the fuck down to the speed of sustainability (disability justice).

[...]

"I just... people still don't grasp what's happening and the scale it's happening at."

-- Rachel Bean, dauer formation ([twitter.com profile] colocha_rachel), 2022-08-29

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