eftychia: Spaceship superimposed on a whirling vortex (departure)
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On Friday I have an appointment with my doctor. The last time I saw her she mentioned that the next time would include a fasting blood test (it's time to check my A1C and cholesterol). I remembered some folks having talked about fibromyalgia-related topics, including blood work, that I'd meant to ask her about, but could not remember everything. Since then I've been meaning to ask y'all for stuff to write down before the next appointment, and, well, forgetting to do that.

So, apart from the obvious ("What should I know about Lyrica, is it likely to work for me despite the categories of drugs I have adverse reactions to, and is it covered by the state insurance?"), what should I write down in my PDA for Friday? What tests for factors that make fibromyalgia worse, what tests for things that can be misdiagnosed as fibromyalgia? (I'm pretty sure what I've got is really fibromyalgia -- a couple of the rheumatologists I saw early on (wow, has it really been fourteen years already?) were very highly spoken of by other rheumatologists -- but hey, if by some miracle it should turn out that I really have something curable instead, who am I to turn down the fairy-tale ending, eh?) I know to ask her to check my vitamin D level ... and, uh, thyroid?? She said they already check potassium pretty much every time they draw blood (I was going to ask for that to try to figure out why the muscles in my legs are giving me so much grief).

Of course, this is a message that I want to have make sense, and I'm quite the other end of the scale from being optimally awake right now, because my sleep pattern lately doesn't seem to have much pattern in it (I did get a longish chunk of sleep Monday evening -- I fell asleep in the middle of composing email to find out whether I had a ride to rehearsal, and woke in the wee hours, mail not yet sent -- but then I was up for a really long time and only managed to stay asleep for ninety minutes when I finally managed to crash again). And yes, I'll sift through alt.med.fibromyalgia later as well, as much of it as I have the attention span for when I get to it.

Anyhow, my memory being even more fragmented than usual (are there Norton Utilities for wetware?), please help me remember what I'd been planning to ask my doctor about now that she's finally acting like she's willing to work with me on this instead of just pushing me through the standard patient checklist.

Next week I need to get my wrist X-rayed -- I have to ask my doctor for the radiology referral -- for the orthopedist appointment on the first.


The other thing on today's agenda is to try to convince myself I have the spoons to make it to the grocery store and back, and count up the contents of the bag o' quarters to see how much of the urgent-list I can afford to pick up. It's that kind of month. (Running out of cheese, bread, coffee, and toilet paper does not sound like a winning option.) Oh, and I need to get around to putting a copy of Wolgemut Live In Concert Pennsic XXXV up on eBay. I need to put the opened copy into a computer or a CD player to check how long it is first, because that's something that probably ought to go in the eBay listing.

I hope I've got the paragraphs in a sensible order. While I'm glad that some people at least find my addled-by-non-sleep writing entertaining, it does feel like more work keeping things more-or-less linear when I've been awake too long. Things start rearranging themselves (paragraphs, words, keys, furniture, buldings) somewhere between eyes and brain, or between perception and short-term storage, or between something and so-... waitaminute, maybe it's the things that other things get lost between that are getting shuffled. No, no, that would mean storing memories in my corneas, thinking with my eyelids, and having a photosensitive cerebral cortex doing the raw image-capture, so that can't be right.

Might have to postpone hiking to the store and just hope I can stretch what I've got (am already out of coffee but do have a few decaf Earl Grey teabags left) until a better time to trek. Probably wind up tromping through tomorrow's predicted "wintry mix" though. But I don't need the sidewalk and a car trading places when I blink. Or to have the streets change direction and accidentally walk off into a parallel universe. (All roads lead to Amber, right? The description of the shifting landscape in the first walk described in that series did make me think of how this brainstate feels.)

Oh. I'm digressing again, huh?

There are 9 comments on this entry. (Reply.)
 
posted by [identity profile] fabricdragon.livejournal.com at 07:34pm on 2008-01-16
yes get a vitamin D test.
if you can, also see if the doctor will send in to Ny for the new test for gluten "sensitivity" which tests pre celiac levels responses.

coffee is bad for you glen

HUGS
 
posted by [identity profile] dglenn.livejournal.com at 04:26pm on 2008-01-17
If they have to send out-of-house for it, it might not be covered, but I'll ask.

What's bad about coffee? If it's just the caffeine, I'm already drinking decaf. If it's other stuff, then I need to reexamine the trade-off between coffee (where replacing the sucrose I used to use with the sucralose and stevia I use now) and orange juice (where I lack the genetic-engineering chops to convince the trees to make fruit sweetened with xylitol or the-sweet-compount-in-stevia instead of fructose). I still drink OJ, but I've deliberately cut way back on it, and made coffee part of my breakfast routine in its place.
 
posted by [identity profile] fabricdragon.livejournal.com at 03:31pm on 2008-01-22
well, tea is better for you, all the flavinoids and such.

have you considered vegetable juices? fresh vegetables juiced or not are really good for blood sugar.
 
posted by [identity profile] ammre.livejournal.com at 09:34pm on 2008-01-16
kinda random...
I'm currently working on the images for the inside instructions of a home A1C kit. It will be the first at home version of it. You put a blood sample on a car and mail it away, in like 3 days you'll get results.

I've never heard of it before my company mentioned it. And now you mentioned it. I guess people actually do know about this stuff.
 
posted by [identity profile] dglenn.livejournal.com at 04:30pm on 2008-01-17
It's well-enough known now that when some friends and acquaintances hear I've been diagnosed with diabetes their first question is, "What's your A1C score?" (The last two times it's been six, and the time before that I think it was something like 6.1 or 6.2, so the next thing they usually say is, "tshh -- that hardly even counts." I'm hoping to keep it that way.)

I don't remember ever hearing my father mention it. I have no idea how old the test is, for that matter.
 
posted by [identity profile] anthro-geek.livejournal.com at 05:15am on 2008-01-17
For thyroid - be sure to get both T3 & T4. Info from the Mayo Clinic about T3 & T4 at:
http://www.mayoclinic.com/health/hypothyroidism/DS00353/DSECTION=3

Checking checked for diabetes also is worth while, as is Vitamin D and celiac disease/issues.

The other thing is to make sure that other medications are not making the fibro worst. I found out today (from talking to a massage therapist) that some high blood pressure meds can make fibro pain much worst (not relevant for me, but good to know...)

I have not tired Lyrica yet, it is on my list after I have been on a new (to me) anti-inflamitory (which I was going to start today but I was not up for trying something new today with how I have been feeling).

The other thing is to have a list of what does help/what does offer relief as that may be helpful to the doctor.

That is all I can think of off the top of my head - I'm a bit brain foggy myself. I'll email you if I think of anything else useful.

I don't know if the state insurance would cover any physical therapy - I go once every 3 weeks (when I am not in a flare up). It seems to be the amount needed to keep me moving and relatively okay. But I am paying out of pocket after 6 or so sessions.

Good Luck!



 
posted by [identity profile] dglenn.livejournal.com at 04:39pm on 2008-01-17
Already diagnosed with diabetes, because they thought it was the most likely explanation for my headaches. (But given how close to being in control my sugar had been, they decided they weren't related after all.)

The bit about blood pressure meds is a bit worrisome, as its a beta blocker that's been keeping the migraines mostly-away. I'll ask about that.

The state doesn't cover any specialists, except routine podiatrist visits (uh, and maybe eye exams?) for diabetics. I'd be very surprised if they cover physical therapy.

Thanks. I should start printing stuff out.
 
posted by [identity profile] anniemal.livejournal.com at 07:55am on 2008-01-19
I am almost ready to kidnap you both just to give you a holiday in Arlington with heat.
 
posted by [identity profile] dmk.livejournal.com at 01:31pm on 2008-01-24
Do you have a breadmaker? It's much easier to keep bread ingredients on hand than actual bread, and it's a lot cheaper and a lot tastier.

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