eftychia: Lego-ish figure in blue dress, with beard and breasts, holding sword and electric guitar (lego-blue)
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posted by [personal profile] eftychia at 08:09pm on 2008-10-25

Ow. Really, ow.

Made it to doctor Wednesday for appt. Why do I always feel so crappy after going to the doctor? Medicated for rehearsal that night, but was going to be about an hour late, and got text message saying attendance was thin and to stay home if I wasn't already on the road -- which is probably a good thing, as Thursday hurt a lot anyhow. Yesterday dragged myself to pharmacy for the drug they were out of on Wednesday, but most of the day my upper arms hurt miserably despite having taken my regular pain meds ... which my doctor has decided I should now only take half as much of (okay, I'll see how that works out), and today has been a complete wreck of a day except for getting a wee bit of coding done and some research. Just woke from a nap, feeling somewhat better than when I crashed, probably in the "close enough to feeling well enough to go out that I could get the rest of the way with enough meds" range, but if I'm being so fragile that wee errands are knocking me out for the next day, I think I'm going to stay in and try to figure out how to save up enough spoons to make going to a party feasible some other weekend.

God damn, how my body hurts, regardless of what position I'm in. I'm $%^*ing tired of this. Tired of the physical pain, tired of having my activities limited by it. I keep telling myself this is just one of those bad spells that happen sometimes with the fibromyalgia, and it'll pass and I'll be back to just being annoyed by the pain and having to take care not to over-do, rather than feeling like I can't afford to 'do' at all. But this one seems like it's been going on an awfully long time.

Sorry for the downer of an entry, but dammit, I'm frustrated. And ouchy. And a little scared by how relentless this flare has been. And a little hungry, but at least that last bit is something I can go down to the kitchen and fix.

There are 2 comments on this entry. (Reply.)
 
posted by [identity profile] melancharisbron.insanejournal.com at 12:00am on 2008-10-26
I'm not worried about a downer entry, and hope to reassure you on this count, as a reader you wouldn't know from Eve.

Accurately recounting your experience might confront a reader with their own anxieties, but you are being informative, which is also important, and a general good. Informative, not just about a specific illness, but also about the difficulties of being ill in society, knowledge which I think we're all too often "encouraged" to stay schtum about. Like, yeah, maybe we're "protecting" someone from being, oh I don't know, made nervous by the notion that bodies can go wrong in uncomfortable ways, but I think, actually, there's a darker side to keeping suffering hidden, in maintaining a society-wide pretense of what we humans should or should not be.

Good luck, and I'm sorry this is such a trial for you. And thank you for being up front about it all. You're increasing the common wisdom with this generosity.
 
posted by [identity profile] chickgonebad.insanejournal.com at 10:51am on 2008-10-26
Thank you for posting this comment. I quite agree with you. I suffer from fibromyalgia myself, and sometimes it helps just to know that other people go through the same misery. Otherwise, one starts to wonder, "Jeebus, is this all in my head?" or something like that.

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