eftychia: Me in kilt and poofy shirt, facing away, playing acoustic guitar behind head (cyhmn)
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posted by [personal profile] eftychia at 05:24am on 2019-11-06

"By then, I had discovered that I was no longer trusted by my doctors about my own body or experiences. I reported odd, terrifying and sudden physical changes; they recommended cognitive behavioral therapy and Weight Watchers. I felt exiled from the world of the well, isolated by thick walls of suspicion. I'm used to feeling like an outsider; I'm the first openly transgender rabbi ordained by a mainstream movement (Reform Judaism). I am used to being rejected and told I should not exist. But nothing prepared me for the outsider status of being chronically ill.

"Think about that for a moment: Approximately 0.6 percent of American adults identify as transgender, just under 0.2 percent of
the world population is Jewish, and 100 percent of us will get sick, yet it is being chronically sick that makes me feel like an outsider. That's how much our society fears and rejects the core human experience of being ill, of having a body that gets sick, that ages, that is not controllable."

-- Rabbi Elliot Kukla, 2018-01-10

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redbird: closeup of me drinking tea, in a friend's kitchen (Default)
posted by [personal profile] redbird at 01:03pm on 2019-11-06
I was told the other day that "I love how well you advocate for yourself, and I hate that you need to."

This is relevant here because the person who said that was my Nurse Practitioner, and because apparently "advocating for myself" was being as accurate as possible about symptoms, including "I don't think there are any more spots like that, but if they were on my back I wouldn't see them."

If/when she (or, more likely, the supervising physician) retires, I am not looking forward to finding a new practice that takes good care of me.

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