eftychia: Me in kilt and poofy shirt, facing away, playing acoustic guitar behind head (Default)
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posted by [personal profile] eftychia at 02:35am on 2004-06-15

The end of last week got scrozzled and it cascaded to screw up parts of my weekend, including my not getting to Conterpoint on Friday, only getting two hours sleep Friday night, and not getting a chance to pack all the instruments I wanted to take with me. Saturday a bunch of additional problems multiplied each other instead of adding (including sitting in traffic on I-495 watching ambulances zoom by on the shoulder for a multi-car pileup ahead), resulting in my missing the first HCB set at PCF. Stir in still unresolved communication problems for an extra measure of frustration. The second set on Saturday was fine despite some monitor issues, and I did get to Conterpoint Saturday evening, quite exhausted. Good to see people, nice to listen to the music, even played a little despite feeling unprepared (I hadn't practiced any of my solo repertoire, didn't bring my filk book, and didn't have anything new), did get some sleep ... Sunday at PCF went well, then I made it back to the Conterpoint dead-dog party, hung out a while, reclaimed the instruments I'd left there, and came home. Monday evening there was an event in DC I was supposed to go to but I ran out of spoons[*]. Spent quite a bit of Monday unconscious, but did manage to get up long enough to eat some soup. Perrine was asking very insistently for something but I could not figure out what. Found a note from LJ support pointing to discussion of why Clive stopped working, which led to a pointer to a new version that addresses the problem ... if you see this entry, it works. Going to go crash again. The weekend took a lot out of me.

Leesburg has lots of cicadas, mostly the expected red-eyed ones, but when I went off to tune before our first set on Sunday I found myself in front of a row of foliage covered with yellow-eyed cicadas.

[*] The essay discusses lupus, but the ideas apply equally well to fibromyalgia.

There are 10 comments on this entry. (Reply.)
 
posted by [identity profile] anniemal.livejournal.com at 02:55am on 2004-06-15
Why do you think I was upset at not being with you this weekend? I don't know why, but I seem to know when you're running out of spoons before you do, and am willing to do damage control even if you don't like it at the moment.
 
posted by [identity profile] donnad.livejournal.com at 04:26am on 2004-06-15
Actually, that essay can be applied to just about any chronic illness.
 
posted by [identity profile] silmaril.livejournal.com at 04:30am on 2004-06-15
I wish I could give you spoons. My mother packed too many with me when I came over, but they are only of the metal kind :-/.
 
posted by [identity profile] chesuli.livejournal.com at 05:27am on 2004-06-15
*hugs* Rest, eat, feel better.

Thank you for the link to the spoons essay, what an excellent way to explain a chronic illness. Filing it for future reference.
 
posted by [identity profile] puzzledance.livejournal.com at 06:30am on 2004-06-15
We noticed that you weren't there for the first HCB set, and we had to leave before the second one. Sorry we missed you, and I hope you're feeling better. I wish I had seen some of the yellow-eyed cicadas.
 
posted by [identity profile] cirith-ungol.livejournal.com at 06:30am on 2004-06-15
::hugs::

Thanks for the link - another FOAF posted something about spoon-stealers, and now I understand she was talking about her CFS and not that mysterious thing that also eats the socks in the dryer.
 
posted by [identity profile] nosebeepbear.livejournal.com at 08:21am on 2004-06-15
Thank you. I wish I'd had this analogy a year ago. One day I *had to* get out to run an errand; it was one of those things that makes your life fall down around your ears if you don't get it done. I dragged my butt out of bed, skipped showering because there was just no way, spent way too long pulling random dirty clothes over my body because finding clean ones was too much, and practically crawled down the stairs. As I forced all the energy I could muster into the act of opening the door, watching my arm move toward the doorknob in slow motion, a voice from the living room called out, "While you're out, could you pick up some milk?" I sat down on the floor and cried.
cellio: (Default)
posted by [personal profile] cellio at 08:42am on 2004-06-15
Thank you for the pointer to the spoon theory.
 
posted by [identity profile] wizwom.livejournal.com at 11:41am on 2004-06-15
Hey, that's a cool link. I like to think I was patient with BluMindy when she was bleched. It's not always easy to know. And she uses a lot more spoons now than she did when we were together, with school and stuff.

I missed Dukon and a meeting of the Highscool 20 year reunion comittee because I ran out of oomph. So I know where you're coming from.
 
The "spoons" theory works perfectly well to describe coping with a disability, too. Metaphorically speaking, some days the silverware drawer's full (if you've been doing the dishes and being conscientious about it); other days you've got to hunt around in the sink to find even one you can rinse off and hope it'll be enough. I have Cerebral Palsy, and I found myself nodding while reading.

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