eftychia: Me in kilt and poofy shirt, facing away, playing acoustic guitar behind head (Default)
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posted by [personal profile] eftychia at 02:45pm on 2005-05-24

I'm feeling better today than yesterday, despite only having gotten about four hours of sleep -- I felt alert and almost perky for a little while this morning, but have since run out of steam and am wondering whether a nap will be enough to render me functional again by evening. At the moment I'm just supremely exhausted, the various aches and pains having retreated to merely annoying levels -- a vast improvement, as I said, over yesterday. I'm also feeling much more coordinated.

Basically, I've been in "flare" for about a month, and I'm really more than ready for this flare to be over. Other folks with fibromyalgia have commented on having a rough time of it lately as well, and some healthy people have noticed other friends of theirs with chronic pain suffering more recently as well. A long time ago I was asked whether my condition reacted to the weather, and I wasn't sure ... So for a while I kept a log, writing down every day how I'd felt that day, intending to compare it to weather data and look for trends eventually. Except that I never got around to gathering the weather records, and I fell out of the habit of logging daily (now it's when I think of it, which means the bad days get written down more than the good days).

Even ifwhen I copy the old notes from paper to a computer and snarf historical weather data from the web someplace, I'll need the help of someone with better statistics-fu than I've got to help me spot any but the most obvious of trends.

Anyhow, what today feels like is that I'm exhausted from dealing with so much pain all of yesterday. Like Sunday was recovering from the effort of Saturday (performance at the festival) and today is trying to recover from the effort of surviving yesterday. So the second question for tonight is, "If I feel well enough to go to rehearsal, should I, or will that constitute pushing myself when I should rest?" (The first question, of course, is whether I'll feel awake enough to drive by then in the first place.) I want to go. I've been missing far too many rehearsals lately already. I also want to be well enough to attend (and enjoy) some fraction of Balticon this weekend, and possibly perform this weekend as well. And to take care of some deadline-impending tasks on my to-do list.

At the same time, [livejournal.com profile] theferrett's post today makes me want to take a nap this afternoon so that I can spend the evening composing, arranging, and transcribing music, then the night writing essays, and finally shopping for recording equipment on eBay around dawn so I can lay down tracks of what's in my head next week, and to hell with everything that distracts me from those. But I know a bunch of people and a few corporations who'll feel a bit put out by that plan. I seek a middle path, a quest made more difficult by chronic illness (but I keep thinking there must be an answer that works for me).

There are 6 comments on this entry. (Reply.)
 
posted by [identity profile] merde.livejournal.com at 07:15pm on 2005-05-24
you know, i would not be at all surprised if the rash of fibromyalgia flares is related to allergies, even in people who aren't aware of having allergies. it's all autoimmune, after all, and autoimmune stuff tends to trigger other autoimmune stuff. if i have a bad allergy attack, my arthritis always acts up violently.
 
posted by [identity profile] blumindy.livejournal.com at 02:30am on 2005-05-25
This happens with my fibro and it is part of the reason that I take diphenhydramine every night even if I'm not having an acute allergy attack right at that moment. They are both auto-immune syndromes/problems and most doctors don't make that connection.

My flare started in early March (I think) and I have noticed that the onset of spring always brings a flare, despite everything I do. I attribute my easing of it (somewhat) to traveling out of the country and to an entirely different climate, where I had only one day of respiratory allergies (from traveling away from base camp and into actual foliage-infected areas.)
 
posted by [identity profile] old-hedwig.livejournal.com at 07:42pm on 2005-05-24
My hands (osteo arthritis) and an ankle (refused to believe was really broken and never got set a few years ago) are bothering me enough that I realy notice - I'm assuming its the chill and damp and differences in air pressure from day to day, but I am also hay-fevery. So who knows.

I think Ferret's assay is real good advice for someone like Ferret - currently pulling himself out from a dperession and trying to undo years of real bad eating/lifestyle/sloth issues. I really don't think that applies to you - you tend to do TOO MUCH, against limitation based on phsical factors.

BTW, I just drove down Rt 1 past UM/armory, and the streets are farily flooded with the rain.
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posted by [identity profile] hobbitblue.livejournal.com at 09:57pm on 2005-05-24
I don't think his post really applies to you, or me, or various other folks battling things beyond their control - chronic illness, disability etc etc. Because most of the time we are battling away to do the things we want, we're not waititng for Life to be perfect, we're hammering away at the door of Life demanding more of it, better of it, the chance to achieve, to create, to enjoy. We already know there's not some mythical perfect time, there's only now.

As someone else on my flist once said "People with ME could take over the world if we could just get up in the mornings", and it rings very true. Personally I'm well aware my time is valuable, its why I try and fill it with so many good things, the whole carpe diem thing, even if the day is very slippery and my hands not strong enough to catch much of it. You do great, from where I'm sitting *hugs*
 
posted by [identity profile] figmo.livejournal.com at 11:15pm on 2005-05-24
Considering I was reading LJ to keep up with my friends while working on my career, my first thought was "This post does not pertain to me. Period."

You could always put "altering my lifestyle to minimize pain" on your list of goals. It may sound silly, but considering one of the reasons I'm trying to make my career switch is health reasons (I've only been sick once since last August, whereas I used to get sick constantly when I worked in high tech), it's not like I'm suggesting something I'm not doing.
 
posted by [identity profile] blumindy.livejournal.com at 02:36am on 2005-05-25
I have always had a weather connection and an allergy (especially, but not limited to, respiratory) connection. One of the problems with fibro, which is really CFIDS, is that it is a syndrome and not a highly delimited disease.

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