I'm feeling better today than yesterday, despite only having gotten about four hours of sleep -- I felt alert and almost perky for a little while this morning, but have since run out of steam and am wondering whether a nap will be enough to render me functional again by evening. At the moment I'm just supremely exhausted, the various aches and pains having retreated to merely annoying levels -- a vast improvement, as I said, over yesterday. I'm also feeling much more coordinated.
Basically, I've been in "flare" for about a month, and I'm really more than ready for this flare to be over. Other folks with fibromyalgia have commented on having a rough time of it lately as well, and some healthy people have noticed other friends of theirs with chronic pain suffering more recently as well. A long time ago I was asked whether my condition reacted to the weather, and I wasn't sure ... So for a while I kept a log, writing down every day how I'd felt that day, intending to compare it to weather data and look for trends eventually. Except that I never got around to gathering the weather records, and I fell out of the habit of logging daily (now it's when I think of it, which means the bad days get written down more than the good days).
Even ifwhen I copy the old notes from paper to a computer and snarf historical weather data from the web someplace, I'll need the help of someone with better statistics-fu than I've got to help me spot any but the most obvious of trends.
Anyhow, what today feels like is that I'm exhausted from dealing with so much pain all of yesterday. Like Sunday was recovering from the effort of Saturday (performance at the festival) and today is trying to recover from the effort of surviving yesterday. So the second question for tonight is, "If I feel well enough to go to rehearsal, should I, or will that constitute pushing myself when I should rest?" (The first question, of course, is whether I'll feel awake enough to drive by then in the first place.) I want to go. I've been missing far too many rehearsals lately already. I also want to be well enough to attend (and enjoy) some fraction of Balticon this weekend, and possibly perform this weekend as well. And to take care of some deadline-impending tasks on my to-do list.
At the same time,
theferrett's post today makes me
want to take a nap this afternoon so that I can spend the evening
composing, arranging, and transcribing music, then the night writing
essays, and finally shopping for recording equipment on eBay around
dawn so I can lay down tracks of what's in my head next week, and to
hell with everything that distracts me from those. But I know a
bunch of people and a few corporations who'll feel a bit put out by
that plan. I seek a middle path, a quest made more difficult by
chronic illness (but I keep thinking there must be an answer that
works for me).
(no subject)
(no subject)
My flare started in early March (I think) and I have noticed that the onset of spring always brings a flare, despite everything I do. I attribute my easing of it (somewhat) to traveling out of the country and to an entirely different climate, where I had only one day of respiratory allergies (from traveling away from base camp and into actual foliage-infected areas.)
(no subject)
I think Ferret's assay is real good advice for someone like Ferret - currently pulling himself out from a dperession and trying to undo years of real bad eating/lifestyle/sloth issues. I really don't think that applies to you - you tend to do TOO MUCH, against limitation based on phsical factors.
BTW, I just drove down Rt 1 past UM/armory, and the streets are farily flooded with the rain.
(no subject)
As someone else on my flist once said "People with ME could take over the world if we could just get up in the mornings", and it rings very true. Personally I'm well aware my time is valuable, its why I try and fill it with so many good things, the whole carpe diem thing, even if the day is very slippery and my hands not strong enough to catch much of it. You do great, from where I'm sitting *hugs*
(no subject)
You could always put "altering my lifestyle to minimize pain" on your list of goals. It may sound silly, but considering one of the reasons I'm trying to make my career switch is health reasons (I've only been sick once since last August, whereas I used to get sick constantly when I worked in high tech), it's not like I'm suggesting something I'm not doing.
(no subject)