Did not make it to recorder workshop. :-( My body vetoed that plan. Frustrated. (In theory I could go now and attend the final two hours of it. [less, now that I've spent the time to write this.] But I'm still feeling kind of half-here, so I'm not sure how much of what I learned in those two hours would stick.)
And once again I recognize the familiar trap after I've fallen into it: for the past several days, instead of giving up and saying, "This week isn't working, I should rest and recover and start trying to accomplish things only after I've accumulated more spoons," I kept trying to do things and failing and using up the few spoons I had to no avail. If I hadn't tried to "be responsible" on Tuesday, Wednesday, Thursday, and Friday, I might have had the energy for today. But it's hard to make that call when in the middle of noticing one's to-do list slipping, being frustrated, and hearing those cultural-background voices whispering that not pushing oneself harder is "laziness". I sometimes manage to "give myself permission" to rest before I get to the point that my body will force it on me, but not often enough.
I could spend many paragraphs of omphaloskepsis examining what I think the reasons are for my having so much trouble learning this set of lessons. But until I've either got some startling insight or come up with a way to make that analysis interesting (or, I'll admit, just get bored enough with everything else in my skull to inflict it on y'all anyway), I'll keep this short (okay, "what passes for short when I write more than a sentence") for now. I've got something else long-winded to squeeze out of my brain anyhow, once I, ah, er, give myself permission to spend time writing instead of doing the "more responsible" things on my to-do list, and simultaneously have the energy to craft that essay.
It probably doesn't help, that I've got too many things I want to do, so that whatever I'm doing I feel like I'm neglecting something else important.
It probably also doesn't help that I've been in an "I don' wanna" phase WRT painkillers lately. I get tired of relying on them, and I get scared of becoming dependent on them or building up a tolerance, and I get worried about running out of them, and sometimes I just get plumb annoyed at needing pills at all. And then I start trying to out-stubborn the pain, or convince myself that I just need a nap, not drugs, and wind up being a lot less productive than if I'd given in and taken them. Then I spend some time viewing them as tools to manage my body for a while, until I once again start getting scared or worried or feeling like I'm "copping out" instead of "being tough" and return to the resenting/fearing drugs phase again. So it's a pendulum. Not having a doctor to talk to about what constitutes reasonable patterns of use makes it worse, but even when I was seeing a doctor, I had this back-and-forth pattern.
Something as powerful as Vicodin but as safe as Ultram would reassure me, except for the fear of running out. (Where "safe" refers to my perception of a bunch of factors, possibly misaligned with objective measures of safety, of course.)
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My only thought--and I'm not finding it all that useful, so far--is that our expectations for ourselves are based on what we could do if we were young and healthy. It's hard to adjust them to any other reality.
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It looks, from reading your journal, that you push yourself as hard as you can, right to collapse, and the moment you get even a single spoon, you're out there trying to spend not only that spoon, but a future spoon or two or three on credit. You don't seem to give yourself time to amass spoons.
And, yea, verily that is a pattern I recognize from personal experience. That's my own personal flavor of stupidity. I'm not working with spoons, I'm dealing with RSIs, and "spend arm", but I did the exact same behavior: "Oh, the pain's down a notch so I'll go spend the day at the computer and then go to a jam session." Me fking brilliant.
I've learned (reluctantly, and not too thoroughly) that rest needs to be scheduled as a priority. Feel free to quote this back at me in the coming weeks. :/
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On the tabs thing, I know its hard to feel you're reliant on things, but the pain specialist my mum used to see pointed out that its better to take painkillers on a regular basis and keep the pain at bay, than trying to do without, because then the pain is controlling you, it becomes a focus and you tend to experience more pain because you wait till the last minute, which depletes the bodies resources because its fighting the pain, sending nerve messages etc etc. Maybe you could come up with a low "maintenance" dose that allows you to function and just take more when you get spikes or something? Having a regular pattern might also make it easier to guage where you are in the cycle of energy/lack thereof, though with fibro I know nothing is that straightforward! :(
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If you can learn to recognize when the pain is starting to come back and take the drug then (before you are IN pain), you will need less of the drug. If you can get on a maintenance schedule, you will usually end up using less medication and have fewer side effects than if you allow it to spike. Also, the pain in and of itself is dibiliating. Even after the pain has gone away, the stress on your body from dealing with the pain will take time to heal.
If you take the drugs that you NEED, you will not become addicted to them. The addictions come when you take more than you need. If you need the percocet (or whatever), the pain will burn through the addictive aspects of the drug (not really but that is the lay-person explanation ... in reality the drug will be fighting the pain and not have enough left over to get you the endorphin-high which is what triggers the addiction).
In a hospice situation, a really high level of drug may be needed and the patient may sleep a LOT. However, some of that is a result of sleep deprivation due to NOT being able sleep well due to the pain. Once the patient catches up on sleep and adjusts to the drug (like any other long-term drug), they will often be more alert on the morphine (or whatever) than they were before being allowed to have the pain dealt with appropriately.e
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There's a reason I guard your rest and try to make you easy. And fetch you whatever when I can. And others speak from more experience. Cede to their advice. (________________!!)
Thank you all. Maybe she'll listen to you.
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