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Okay, that was bad. Is bad.

I was at my desk, working on the computer, when I got hit with a blast of nausea and dizziness and ... extreme acute sleepiness ... bad enough that I was certain if I did not get to the bedroom in the next few minutes I would be stuck in my chair for an unknown length of time. I made it to bed feeling weak as well as dizzy and lay down, with that "sleep paralysis even though I'm awake" effect taking hold almost immediately but incompletely: sometimes I'd be completely disconnected from my limbs, other times one arm or one leg or my fingers would suddenly respond to my attempts to move (my nose itched) while other parts remained stuck. I thought I would fall asleep almost immediately, instead I lay there feeling all twitchy but not really moving for about half an hour, occasionally managing to briefly open my eyes, and experiencing major proprioception glitchitude and tactile hallucinations. I've been sleeping on my side or not quite on my stomach recently, but this time I was on my back, with my shoulders tucked under my pillow (so as to keep them from feeling scrunched) and my hands over my head with my fingers curled awkwardly. At least I think my fingers were curled; since my proprioception was wonky I can't be certain. But when I was able to move them it felt as though I was uncurling them.

Part of the time it felt as though I had no arms. Other moments it felt like one arm was lying across my belly, or at my side, even though I knew it wasn't. At one point it felt as though my right arm were attached backwards. The out-of-position sensations in my neck, knees, and ankles were more subtle, and apart from my fingers, I don't remember noticing any other proprioceptive misfires. The tactile hallucinations were odd, especially before I twigged that they seemed to mostly be replays of past real sensations. So at several points I sort-of-felt Perrine walking across me, but a) I knew she wasn't there, and b) the sensations were ... half-there, incomplete, like a double-exposure that makes one image appear ghostlike, but all in my sense of touch. There were other tactile hallucinations but I don't remember what they were -- the ghost-kitty footsteps were the most noteworthy.

Then came the start of dreaming, followed by the start of sleep and the continuation of dreaming. (I don't much like it when the dreams start before I'm quite asleep, but it's something that happens sometimes. It happens to others as well, right?) Oddly, the dreams seemed to be chopped up bits of previous dreams, mostly one to two seconds long, reassembled randomly and even more disjointedly than dreams usually get. The barrage of distracting images was bad enough (it was like, "Hey, I want to sleep here; stop with the dreams that are keeping me from getting any rest," if that makes any sense; almost like I still wasn't completely asleep even for the period when I was asleep or something), but when I noticed they were repeats, that knowledge was even more distracting. At one point I made a mental note to write about a fragment from a dream I'd meant to describe here the day I first dreamt it, but by the time I woke I'd forgotten which one it was.

I slept for approximately half an hour, and woke feeling impossibly weak, no longer nauseated, still somewhat dizzy and feeling twitchy, and on the verge of tears. Perrine entered the room and started clawing the bed, and the first time she did so the sleep paralysis effect prevented me from being able to shoo her. Even speech was difficult.

When I woke, once I was able to move again, I noticed that my sense of touch was magnified. Touching Perrine's fur with my fingertips was amazing.

Once I felt mostly-awake, I wondered whether I was steady enough to stand. (Standing was difficult. Even lifting my head off the pillow was significant effort.) Remembering that when she whom I'm not permitted to admit I know suffered a bunch of falling-down spells they were eventually diagnosed as migraines minus the pain, and considering the fact that I do suffer migraines, I wondered wonder whether this entire episode could be in that category (the other likely candidate is "the fibromyalgia being especially weird"; failing either of those we go into too-scary land), so I thought maybe I should take some caffeine. I did make it to the kitchen, though I did so by descending the stairs backward with my arms wrapped around the railing. (I took the steep back stair instead of the easier-looking front stair because the thought of navigating the "nothing to grab onto or lean against" zone of the dining room seemed a greater obstacle than the steep stair.) I fed Perrine and extracted a Coke (which I have on hand specifically for medicinal purposes -- I usually drink stuff without caffeine) from the fridge without falling over (though my legs went funny directions a couple of times), and managed to climb the stairs (dizziness and "not trusting knees" feeling the problem on the way down, simple weakness being the obstacle on the way up since the dizziness isn't as much of a factor when ascending). It took me four tries to open the Coke. Twisting the cap enough to break the seal wasn't a problem, but my hands were too weak to break the connection between the cap and the anti-tampering ring at first.

When I started typing, a fresh wave of dizziness struck so I kept my eyes shut for most of the first paragraph. I am typing very slowly, my left arm trembles when I lift the bottle of cola (suddenly I'm quite glad that we use plastic bottles nowadays, because lifting a glass one would just be that much more difficult), and I'm starting to feel fibromyalgia pain in my right forearm and wrist. I also just noticed for the second time that I've been clenching my jaw most of the time I've been writing. (I noticed it twenty minutes ago but forgot having noticed until I noticed it againjust now.) At this point I'm looking to distract myself until I wake up enough out of this fucked up state to be able to go back to bed and try for something more like normal sleep. Oddly, writing is easier than reading right now, so web surfing is probably not going to be how I kill the time. Perrine gave me the most concerned look when she jumped up on the desk. (But she wasn't in "take care of the human" mode when I was in bed and occasionally moaning. Then she was in "maybe my presence will serve as a reminder that my food dish is empty" mode.

My eyes feel dry. And my peripheral vision feels constricted. Hmm. Actually, I'm missing a couple of degrees on the left but the right seems normal ... but it feels as though I'm missing more of my peripheral vision than I am. I've had this sensation before but have not found an adequate way to describe it.

This sucks. Mightily.

The timeline is: 3:05 - very sudden onset of symptoms (I had been well focussed on what I was doing until then); 3:30-3:40 - feel like I'm finally falling asleep; 4:00-4:05 - notice that I'm not actually asleep (any more?), unsure of how long that'd been true; 4:25 - start trying to stand up; 4:30 - log in and start writing this. I'm now about halfway through a 710 ml bottle of Coca-Cola. I did down some Gatorade before the Coke, hoping to counter dehydrating effects of the caffeine.

There are 16 comments on this entry. (Reply.)
ext_4917: (Default)
posted by [identity profile] hobbitblue.livejournal.com at 03:56am on 2004-05-17
*tight hugs* that sounds very scary indeed - coke was a good idea for your blood sugar & for liquids, have you eaten anything yet, that might help (I know you said you were nauseous but when I get weird symptoms I often find the food sort of settles things down). I've not had some of the symptoms you describe but the sleep paralysis and disconnection for *me* were often linked to a lack of enough fresh air in the room. sorry, just casting about for anything that might help you. Hope this passes off soon and that you managed to get more sleep and get through it! *more hugs*
 
posted by [identity profile] tikvah.livejournal.com at 04:50am on 2004-05-17
Yikes! I hope things settle down soon. As far as symptoms, it sounds like we have some of the same issues. For the eyes, I use Genteal moisturizing drops every night and every morning (they don't have lanolin like a lot of other dry-eye products). For the clenched teeth, I have a mouth guard I sleep with every night that keeps my teeth from destroying themsleves during the nightly clenching and grinding that I've had for twenty years or so. I wish I could offer suggestions for each of the symptoms. I know just how mightily they can suck.
 
posted by [identity profile] donnad.livejournal.com at 05:29am on 2004-05-17
Glenn, This is disturbing and scary. You should get checked out by a doctor. It sounds almost like you had a mini stroke. Please get checked, If this ever happens again, CALL SOMEONE to come be with you at least, they can call 911 if necessary. Make sure they have a spare key to your place in the event of an emergency.

The only other thing it could have been was a hypoglycemic episode. When I sugar crash, I get all weak like I can't move, I get nausea and dizziness. Sometimes just lying down for a few minutes makes it pass long enough for me to get some juice and something to eat and I'm fine. Other times I need a nights sleep before I'm okay again.

But regardless, you need to get checked for this. If you have to print out what you wrote and let the Dr. read it, do it! But get checked.

 
posted by [identity profile] vvalkyri.livejournal.com at 06:15am on 2004-05-17
What Donna said. If you're not willing to go to the ER, fax the above to your PCP. Weakness, paralysis, weird sensations...

At least call...
If the symptoms have cleared it's not *quite* as scary as if you were writing about it and they'd not...
 
posted by [identity profile] katrinb.livejournal.com at 06:20am on 2004-05-17
I third that. Get thee to a doctor. Those symptoms sound disturbingly neurological to me.
 
posted by [identity profile] puzzledance.livejournal.com at 05:30am on 2004-05-17
Eeek! That sounds scarybad. I have had dreams start before I'm quite asleep, too. It's a very uncomfortable sensation. I tend to fall half asleep, notice that I'm in a dreamlike state, and then begin a panicked struggle to wake up. When I start to drift back into sleep, I feel like I'm falling, and the cycle begins again. It's very odd, and I really don't like it when it happens.

I hope you are feeling more like your usual self when you read this.

*hugs*
 
posted by [identity profile] nancylebov.livejournal.com at 05:59am on 2004-05-17
Migod! I don't know what it was, but I hope it never happens again. And I'm impressed that you were able to write a description so soon after.

This reminds me of a notion--is there such a thing as a weird symptoms website? It seems like a way to get started on diagnosing hard cases.
 
posted by [identity profile] nosebeepbear.livejournal.com at 07:31am on 2004-05-17
I had a TIA a few years ago; and this post sounds extremely familiar. PLEASE go to a doctor now. *hugs*
cellio: (Default)
posted by [personal profile] cellio at 07:40am on 2004-05-17
Yikes! That sounds like "stroke" to me, not "migraine". (No, I'm not a doctor.) Please see your doctor, or at least talk to him on the phone (that probably costs less) and tell him what happened. Faxing the description is a good suggestion.
 
posted by [identity profile] creativepain.livejournal.com at 08:06am on 2004-05-17
Replied here and AMF:

I'd agree with those sensible people who said you need to see (or at least speak to) a doctor.

Sounds scary. Hope you feel better.
 
posted by (anonymous) at 08:36am on 2004-05-17
Hi I read your post in AMF and I'm also pretty sure your body shouldn't be acting that way. I have what I refer to as "coma's" where I will be overcome by a wave of exhaustion and won't even be aware of getting to a safe place to lie down. I'll hear my family moving around me, and try to wake up out of this state I'm in but won't be able to. I'll wake up hours later, still totally exhausted. My doctor feels it's caused by CFS. BUT I don't feel like it's the same thing you experienced, I don't have that numbness and inability to function when I "wake" up. I don't want to frighten you but it sounds like you had what is commonly known as a "mini-stroke" or a TIA (Transient Ischemic Episode). I think you should get yourself to your doctor as soon as possible. They are actually usually easily treatable with anticoagulants. Best of luck to you--fran
 
posted by [identity profile] silmaril.livejournal.com at 09:23am on 2004-05-17
I'm not calling you in case you're asleep, because I don't want to wake you up if you are, but how are you feeling now?
 
posted by [identity profile] red-lynx.livejournal.com at 10:58am on 2004-05-17
Hey Glenn,

I've had those that "sleep paralysis even though I'm awake" effects as well as dreams when I am not quite asleep. Haven't had any for years, though. However, I will not be too surprised if another round of them were to occur. They were particularly prominent for me in late adolescence.

Not sure if this helps, but if you want to compare notes email or call me. Erg, my #s changed recently and my email was inoperative, Marcia or Ed has my uptodate info (don't want to post it on LJ and I haven't got around to emailing ppl to update them or you would have it already).

*purrs & hugs*
RedLynx
 
posted by [identity profile] angelovernh.livejournal.com at 12:04pm on 2004-05-17
I hope you feel better soon!

FYI, sleep paralysis is a pretty common spiritual/metaphysical thing.. Not that I wouldn't go see a doctor, but if I were in your shoes, I'd wait and see if it continues first because damn it, doctors are expensive without medical insurance. Try some deep breathing and a shower, too. It almost sounds like low oxygen to me, given what I just went through, but if you can breathe deeply and regularly for a few minutes that might help. Sniff around for a gas leak, too.
 
posted by [identity profile] blumindy.livejournal.com at 04:59pm on 2004-05-17
Since I have both fibro and migraines, I can't say what causes what.
I've had the same near-exhaustion collapse with nausea before and I generally "blame" the fibro.
I get the weird sensations and the inability to "wake" or to move although my brain is aware.

This sounds pretty bad. Unlike you, I do caffeine ALL THE TIME and I do find it helps (a bit) with the chronic fatigue. I hate it that you're alone through all of this all the time.
I'd check with the doc if I were you despite the expense. It's sure to cost less than if this is the beginning of something that winds up getting out of control.....

*HUGS* Let us all know if you're okay. Did the Coke help??
 
posted by [identity profile] chakaal.livejournal.com at 01:22pm on 2004-05-28
I have had episodes like this when my blood sugar goes berserk. I second (or is it third?) the notion of considering a blood sugar or hyper-insulemia issue if/when you can.

I've managed to avoid problems like this by managing my diet very carefully.

I hope you get it figured out and controlled soon. It is scary to think about such an episode happening while driving, for one thing.

--Chak

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