eftychia: Me in kilt and poofy shirt, facing away, playing acoustic guitar behind head (Default)
Add MemoryShare This Entry
posted by [personal profile] eftychia at 03:44pm on 2004-05-17

I figure a new entry will let worried people see this faster than posting followups to each comment to my scary previous entry...

I've had some normal sleep, but not very much (I woke up every half-hour or hour). Right now what I mostly feel is seriously sleep-deprived, a little dehydrated, and "caffeine hangover" -- the caffeine seemed to help a little, but not all parts of me liked the caffeine. I'm dizzy, but it's that somewhat too familiar "I haven't finished sleeping" type of dizzy feeling. I feel weak, but all my parts seem to be properly under conscious control.

I do not currently have medical insurance or an HMO; I do not currently have a regular doctor. I'm really not sure where I should go with this. Or how much of a paperwork nightmare it's going to wind up being. To the folks saying "TIA", "stroke", or "something neurological", yeah, those are the "too-scary land" that I didn't want to think about.

Each of the symptoms is something I've experienced before, though I don't recall onset of the "must lie down NOW" feeling being that sudden before. (And yes, I'm aware that my having experienced each of the symptoms before could mean that it's not the first time Something Bad has happened, as easily as it could mean "Oh, it's just that again".) I'm not sure whether I've experienced all of these symptoms at the same time before. Yes, it is/was scary. I looked up TIA and -- eek -- I see why folks are saying that. (And yes, I saw the part about feeling better again afterwards but not actually being safe-better.) On the other hand, the symptoms are also consistent with migraine, AFAIK, and caffeine did seem to help a little bit. I really hope it wasn't a stroke or TIA. *worried*

This episode actually highlights one of the confusing and frustrating things about fibromyalgia: because both fibromyalgia and migraine can mimic much more urgently dire conditions, one is often left wondering, "Was that something I need to go seek treatment for right away, or is it 'just the fibro' / 'just the migraine' and they won't be able to do much for me other than tell me to wait for it to pass?" So basically it can mask more serious problems, and it can cause lots of extra fear and expense by suggesting more serious problems that aren't there. :-(

Doctors were convinced she-who-must-not-be-named was having Major Scary Neurological Bad Stuff before they figured out that her "fall down and not have control over limbs" episodes were actually a form of migraine. (Well, I guess migraine does count as neurological bad stuff, but not as major-scary as a stroke.)

I'm not sure what to do about medical care, especially since at this moment it doesn't seem like an "emergency" any more.

And I'm torn between being worried myself and trying to reassure everyone else that I'm okay.

Bleah.

I'll go check alt.med.fibromyalgia for followups there, and start on replying to comments to my last entry unless I decide to go lie down again first.

There are 7 comments on this entry. (Reply.)
 
posted by [identity profile] rms-butterfly.livejournal.com at 12:59pm on 2004-05-17
Glad you're not dead! Very scary situation you had, though. Keep us posted re: how you're doing. *hugs* 'berta
 
posted by [identity profile] merde.livejournal.com at 01:05pm on 2004-05-17
have you looked into your local public health services agencies, or applied for Medicaid? it sounds to me like your finances are sufficiently dire that you should qualify pretty easily for assistance as a low-income individual. a quick web search turned up this page with links to more info and a Medicaid application: http://www.dhr.state.md.us/fia/medicaid.htm.
 
posted by [identity profile] sjo.livejournal.com at 01:13pm on 2004-05-17
People's Community Health Centers
3028 Greenmount Avenue, Baltimore, MD 21218
Phone: (410)467-6040 Fax: (410)235-8982

Started as a free clinic simultaneously with Berkeley Free Clinic on the West Coast, People’s Free Medical Clinic was the first free-standing medical center on the East Coast. Together, these centers were the first in the country. Staffed by an all volunteer group of professional and lay people, People’s Free opened to provide adult medicine, pediatrics, gynecology and mental health counseling. People’s has evolved over the past three decades to become a full service medical, dental and behavioral health center accredited by the Joint Commission on the Accreditation of Health Care Organizations.

Still operating its largest clinical practice within the original building on Greenmount Avenue, People’s has added four additional delivery sites – a behavioral health program on the east side of Greenmount Avenue, full service practices at 5225 York Road and 5004 Ritchie Highway, and the newest location on the grounds of the Rehoboth Church of God on Poplar Grove Street, opening Winter 2002.
 
posted by [identity profile] merde.livejournal.com at 01:34pm on 2004-05-17
thank you so much for posting this. please, please, glenn, hit the free clinic and get yourself checked out. there are a lot of us out here who don't want to lose you!
gingicat: deep purple lilacs, some buds, some open (Default)
posted by [personal profile] gingicat at 01:18pm on 2004-05-17
In a situation like this, the doctor would MUCH rather see you and tell you it's nothing than have you come in too late for her to help you. Really.

I know it's a money issue, but if everyone who read this kicked in $5, then you'd likely have enough to cover an initial appointment and then some. If you don't have PayPal, and can't find someone local to you who does, I can collect and send you a check to reimburse you for whatever you pay out. But *do* go see a doctor, now, please?
 
posted by [identity profile] kimberlogic.livejournal.com at 01:32pm on 2004-05-17
So, if it was a TIA, it could be an indicator or warning that a bigger stroke is on the way, and often, when they find a TIA, they can give you meds and such to prevent a stroke. And while I know that eventually you might be billed, going to an emergency room or an urgent care center is totally appropriate and you're probably eligible for reduced charges or free care.

I'm worried babe - please consider checking it out? Or emailing Dr. Jen or Dr. Jon (you have met both of them at Baitcon, right) to ask for advice on how to get care?

 
posted by [identity profile] donnad.livejournal.com at 06:05pm on 2004-05-17
What they said...

You can't think about the money when your health could be in danger. Because of your financial situation you most likely qualify for some sort of benefits. Maybe this is the hint that you really do need to do the paperwork you have been putting off for months.

Glenn, we don't want anything to happen to you, please get checked.

Links

January

SunMonTueWedThuFriSat
1 2 3 4 5 6 7
8 9 10 11 12 13 14
15 16 17 18 19 20 21
22 23 24
 
25
 
26
 
27
 
28
 
29
 
30
 
31